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  • #46
    Originally posted by Peanut View Post
    Article is a few days old. I don't know if it can help anyone here, but I thought I'd share.

    Migraine patients can now try three new drugs for prevention

    " "They have a lot of promise and are potentially very important," said Katherine Hamilton, a headache specialist at Penn Medicine. The drugs, which are injected under the skin, offer hope for patients who have not responded to other treatments, but Hamilton said that what is "potentially even more clinically relevant is they have a lower side-effect profile" than other medications commonly used for migraine. She added, though, that it remains to be seen how patients who take them for long periods will fare. As new drugs, their long-term impact is not yet known."

    "Silberstein said insurance is expected to offset erenumab's price tag, about $600 a month, but patients will be eligible only if they have tried other drugs first and found they didn't help. He and Hamilton said some other migraine drugs have similar costs.

    Louis Colburn, 71, a retired police officer and security manager who gets migraines most days of the week, was among the first of Silberstein's patients to try fremanezumab. His headaches, he said, are "just like somebody's got a drill inside your brain." He watched calmly last week as nurse practitioner Rachel Seligman emptied three syringes under the skin of his left thigh.

    The shots should last three months. Silberstein said Colburn should see results in a week. He expects that patients with frequent headaches won't mind getting three shots at once. "If you realized how bad a migraine headache is, the shots don't matter," he said.

    Migraines affect 40 million people in the United States. These drugs were tested in people with chronic migraines, defined as 15 or more headaches a month. One to 2 percent of the population falls into that category."
    Originally posted by Sophia23 View Post
    Amazing what diet, exercise, and a little more sleep can do for a person. I'm glad to read that it's lessoned a bit pain wise with these changes for you.
    Peanut thanks for posting.

    Sophia - if your neurologist recommends a trial of one of these products, each has programs to assist with benefits verification and substantial savings (eligibile with private insurance from an employer). Each company has a third party to coordinate verification of benefits/prior authorization for the product and savings program.

    For example if the co-insurance cost is $600 and a person is eligible for the savings it would be $5 out of pocket as the savings program covers $595. In some cases the amount covered by the program will be applied to the annual deductible. For a patient with private insurance or cash pay there are no income limits.

    Sharing for information purposes only - no assumptions about anyone’s finances.
    Last edited by Fantaztic7; 10-27-2018, 02:42 PM.

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    • #47
      Originally posted by Fantaztic7 View Post
      Peanut thanks for posting.

      Sophia - if your neurologist recommends a trial of one of these products, each has programs to assist with benefits verification and substantial savings (eligibile with private insurance from an employer). Each company has a “hub” run by a third party to coordinate verification of benefits/prior authorization for the product and the savings program.

      For example if the product is $600 and a person is eligible for the savings it would be $5-20 out of pocket will the savings program covers $595. In some cases the amount covered by the savings program will also be applied to the annual deductible. For a patient with private insurance or cash pay there are no income limits for the savings.

      Sharing for information purposes only - no assumptions about anyone’s finances.
      Good to know. Even with insurance, medical expenses can be high. Right now not doing anything fancy for mine - other than some vitamin supplements that I'm trying. Not sure what to make of them, since I was able to kill my last migraine very quickly, but I've been able to do that in the past if I catch it and treat it quick enough - but then have had a headache that was not debilitating, but constant for about 7 days ... guess it's better than a migraine.

      All information is welcome here, thank you for your input!
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      • #48
        I don't know that all eye pain is due to migraines with me. I might be too quick to jump to conclusions sometimes thinking it's a migraine. I know I have had a constant headache recently and woke up with pain in my right eye this morning thinking great I have a migraine starting. I didn't take anything-I had about 4 cups of coffee ... didn't have the light sensitivity or nausea with it - so anyways didn't take anything - had a breast cancer walk we were doing this morning - and because we didn't plan well on parking what was suppose to be around a three mile walk - was a 6-7 mile walk for us. Anyways, the eye pain is gone again without any medicine. Maybe not a migraine.... but I swear exercise seems to do wonders sometimes.
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        • #49
          Originally posted by Sophia23 View Post
          but I swear exercise seems to do wonders sometimes.
          exersise is an endorphine release. Much like sex is. If it works, keep doing it.
          Last edited by Saddletramp; 10-30-2018, 06:11 AM.
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          • #50
            I tried convincing my wife once that it would help my migraine lol... Didn't get anywhere with that.

            I've had an awful headache since last night... Not a true migraine, my wife threw the four year old onto the bed she bounced and slammed her head into mine right above my nose...

            I was all puffy and swollen, she was just peachy...
            Last edited by Freyaka; 10-29-2018, 07:25 PM. Reason: Words are hard....
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            • #51
              Originally posted by Saddletramp View Post
              exersise is an endorphine release. Much like sex is. If it works, kerp doing it.
              Too bad I can't do either
              "Happiness is just an illusion, filled with sadness and confusion." Jimmy Ruffin

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              • #52
                Originally posted by Freyaka View Post
                I tried convincing my wife once that it would help my migraine lol... Didn't get anywhere with that.

                I've had an awful headache since last night... Not a true migraine, my wife the my foot year old onto the bed she bounced and slammed her head into mine right above my nose...

                I was all puffy and swollen, she was just peachy...
                my ex wife had migraines, didnt work with her either.
                Last edited by Saddletramp; 10-30-2018, 04:21 AM.
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                • #53
                  Originally posted by Saddletramp View Post
                  my ex wife had migraines, didnt work with her either.
                  Do you know if she still gets them?

                  (just messin with ya)

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                  • #54
                    Originally posted by Freyaka View Post
                    I tried convincing my wife once that it would help my migraine lol... Didn't get anywhere with that.

                    I've had an awful headache since last night... Not a true migraine, my wife threw the four year old onto the bed she bounced and slammed her head into mine right above my nose...

                    I was all puffy and swollen, she was just peachy...
                    sounds painful, hope it passed after awhile ...
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                    • #55
                      Originally posted by DevilSpawn View Post
                      I went to sleep at midnight and woke up at 3:30AM with a very slight migraine just above my left eyebrow. It was at Stage 0.5 out of ten. I did a little writing for about 20 minutes and noticed it went from 0.5 to 1. I got 2 Tylenol and a large glass of water, wrote for about 20 minutes more and went to sleep. Thank God and Sweet Baby Jesus that I caught it in time. It was gone right before I went to sleep.

                      I know sometimes it's difficult to do because they can go from 0-100 so fast, but if you feel like it's coming on, take whatever medication you have. I got lucky because I've had those pre-headache above the eye before. Those become 10+ and debilitate me for 1-3 days. I needed to enjoy this Sunday because it's a rare stress free day wth the Raiders on bye.



                      Although Bye is -3.5 in the spread.
                      I know what you mean about having to catch them early, because they escalate so fast. I was taking the Fiorcet right away for the last few years as soon as I had felt the pain either in my eye or above eye. Then when I did see a specialist he kinda made me worry about how much i've used that over the years, told me anything over 3 times a month would cause rebound headaches < not sure if that's the right word, but cause them to come on more frequently... Yet at the same time, if you don't take the stuff early, you end up taking more and being laid up much longer with one. You can't win sometimes. Last weekend may be the first time in years I didn't attempt to take anything right away with the eye pain, and still can't believe it went away without something, because that's highly unusual from my previous experience.
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                      • #56
                        Originally posted by Sophia23 View Post
                        I'm just curious. I know there are a lot of people who deal with these. I remember there was someone else on the boards who use to complain about migraines often, so if there is another thread already... sorry mods.

                        Anyway, I'm curious what people take for it, if you have found something that works. This has been one of my worst years with them so far. I take naproxon and fioricet, this use to work... but the last few times, I've been given generic fioricet, which never works and if anything makes things worse.

                        I once read that vitamin D helps, and I seriously thought it did because I quit getting them so often, once I started taking a vitamin D supplement every morning.

                        I had an ice pack on my right eye off and on for almost a day and half with my last one... and that's what usually numbs it enough to ease it, but this barely works anymore... just curious for those who deal with them often, if you've found some stuff that works.

                        When the pain in my eye gets to be a dull pain rather than severe, I've found a hard run on the treadmill will kill it completely. Just curious how others deal.
                        A properly fitted bite appliance from a dentist that REALLY knows what he is doing. Should set you back about $800 but really worth it. You are both probably primary clenchers at night with zero signs of wear on your teeth. You masseters fire so hard you can't scrape your teeth together to create wear on them.

                        It's a long road, but you can get there.

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                        • #57
                          I had a headache every day this week and each time it came literally right after I ate my salmon lunch. Foods are triggers but not all the time. A good cup of coffee got rid of them pretty quickly, except on Wedneday night. I had the beginnings of a migraine that was the sharp pain right above my right eye. I'm on vacation this week so with this pain's potential to get worse, I prepared to shut down for 48 hours with Netflix and Hulu as I felt this one could be a doozie. Thankfully a cup of coffee and relaxing got rid of it.

                          Originally posted by Sophia23 View Post
                          I once read that vitamin D helps, and I seriously thought it did because I quit getting them so often, once I started taking a vitamin D supplement every morning.
                          Hmm I wonder if that's why my headaches are less severe than they've been in the last 20 years. I am Vitamin D deficient (lowest number was 9) but I got it up to the 20s, which is still below. My Vitamin D was prescribed once a week pill.

                          Originally posted by Sophia23 View Post
                          I had an ice pack on my right eye off and on for almost a day and half with my last one... and that's what usually numbs it enough to ease it, but this barely works anymore... just curious for those who deal with them often, if you've found some stuff that works.
                          Ice packs rarely work for me anymore, but they used to. Barely. I still use them because it's better than nothing and it does dull the pain, but it only turns it into a dull migraine.

                          Originally posted by Sophia23 View Post
                          When the pain in my eye gets to be a dull pain rather than severe, I've found a hard run on the treadmill will kill it completely. Just curious how others deal.
                          Wow I have to try this next time, and I'm a treadmill runner. I never did it when I had a headache or migraine. My workout schedule literally revolves around my chronic headaches but strangely I still get my workouts in, just at odd times.

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                          • #58
                            Originally posted by AugustInHouston View Post
                            A properly fitted bite appliance from a dentist that REALLY knows what he is doing. Should set you back about $800 but really worth it. You are both probably primary clenchers at night with zero signs of wear on your teeth. You masseters fire so hard you can't scrape your teeth together to create wear on them.

                            It's a long road, but you can get there.
                            That's interesting. I know there are a lot of different things that lead to migraines, hadn't heard of this before but wouldn't count it out for some who get them. Even though it's kinda personal, I'll be completely honest as to where mine likely stem from, since both doctors i've seen agree with me on my cause. I'm a female in my now mid-forties, mine started in my late 30's and have been pretty much like clockwork for two a month for the last 5 to 6 years. Mine are likely hormonal. Occasionally when I have much added stress that will lead to an extra one or two in the month. Like DS, I've found certain foods that set them off as well that I have to stay away from when it clicks it's a food trigger.

                            Interesting information here that you posted, thanks for posting, it may be helpful to some who read here.
                            Last edited by Sophia23; 11-02-2018, 05:21 AM.
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                            • #59
                              Originally posted by DevilSpawn View Post
                              I had a headache every day this week and each time it came literally right after I ate my salmon lunch. Foods are triggers but not all the time. A good cup of coffee got rid of them pretty quickly, except on Wedneday night. I had the beginnings of a migraine that was the sharp pain right above my right eye. I'm on vacation this week so with this pain's potential to get worse, I prepared to shut down for 48 hours with Netflix and Hulu as I felt this one could be a doozie. Thankfully a cup of coffee and relaxing got rid of it.


                              Hmm I wonder if that's why my headaches are less severe than they've been in the last 20 years. I am Vitamin D deficient (lowest number was 9) but I got it up to the 20s, which is still below. My Vitamin D was prescribed once a week pill.


                              Ice packs rarely work for me anymore, but they used to. Barely. I still use them because it's better than nothing and it does dull the pain, but it only turns it into a dull migraine.


                              Wow I have to try this next time, and I'm a treadmill runner. I never did it when I had a headache or migraine. My workout schedule literally revolves around my chronic headaches but strangely I still get my workouts in, just at odd times.
                              I don't know that what works for me will work for you, but I hope so... The specialist I saw didn't saw didn't say anything really when I mentioned that I felt vitamin D had helped over the years. I'm also vitamin D deficient, work indoors, and don't get a lot of sun expect maybe get more on the weekends - anytime I stop taking it as a supplement I seem to see a difference in how I feel and I start again. It kinda make sense, since lack of vitamin D is common with depression - so I would think it also has an impact on stress and just overall well being. I'm not saying what the specialist suggested works for me, because I only started with this last month and haven't and it's still just a trial period - haven't had time to make a decision if it's helped or not. He suggested though for me - vitamin supplement Magnesium 400 mg, Riboflavin 400 mg, and CoQ10 for 300 mg's. He said most people he would tell 800 mg of Magnesium, but due to my lower blood pressure not to do that - since it can lower it more I guess. I can see why the Magnesium would help, since it is kinda calming and helps people sleep... I'll admit i don't really know the benefits of the other two supplements.

                              Same for me with the icepacks ... it's more of a way to dull the pain, so it doesn't feel like a knife in my eye, but more dull...

                              The running or strenuous exercise doesn't always help, but sometimes it's the only thing that will work. It often surprises me. Kinda like last weekend when I had a headache off and on for multiple days, then the eye pain started. I don't know if it was the 4 cups of coffee that morning or the strenuous exercise that did the trick. Maybe both. After walking more than five miles, it was an uphill walk for about 1.5 miles back to the car, and it was then I noticed both the headache and the eye pain were gone. Was very happy, and hadn't expected that to work with the onset of the eye pain, since exercise typically only works for me at the very end when it's lingering but dulled.

                              Hope you feel better soon, and it doesn't lay you up for too long DS.
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                              • #60
                                You all are very knowledgeable about migraines. I guess you have to since you live with them.

                                Read an article about migraines (Better Homes and Gardens--What type of headache do you have?) and you've covered most of it here.

                                Know your triggers: Stress, hormonal changes, chocolate, cheese, red wine, caffeine and cured meat.

                                Work up a sweat: One study found out that 40 minutes of cardio 3 times a week was as effective as daily medication.

                                Look into alternatives: Acupuncture (nearly halved the number of migraines per month) and biofeedback (can cut frequency and severity by 45-60 percent).

                                Supplements: Magnesium can prevent migraines, especially those linked to monthly hormonal changes. Riboflavin may reduce the number and pain.
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